Promote Transition

CYACC – Center for Youth and Adults with Conditions of Childhood

CYACC Director: Mary A Ciccarelli, MD

CYACC Goals:
  • Highest level of health outcomes
  • Highest level of self-advocacy
  • Highest level of community inclusion

CYACC Methods:

Multidisciplinary team - Family advocates, social workers, nurses, physicians and community resource representatives

Preparation ages 11-18 yrs.:
  • Comprehensive medical and socio-emotional assessment
  • Transition planning
  • Counseling to address socio-emotional and health education needs
  • Primary Care Medical Home coordination and support
  • Resource referrals to anticipate and prepare for needs

Transition 18-22 yrs.:
  • Portable medical summary
  • Patient- and Family-centered transition goals shared

CYACC Results as of May 2010

  • Initial assessments began in April 2007
  • 450 patients to date
  • Average age - 18 yrs. (range 12-22 yrs.)

Highest activity areas to date:
  • Health insurance transitions
  • Access to community resources
  • Parent-child dynamics
  • Over-supervision vs. under-supervision vs. “just right”
  • Self-management skills
  • Behavioral issues
  • School accommodations
  • Supplement adolescent preventive healthcare